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GOOD NEWS:
that my last 3 MRI's (1/08 - 7/08 - 2/09) - have all
shown the cavernoma
is "stable"
(no more bleeds - although slowly getting bigger).
The big news is that
a skilled Neurosurgeon has found that the accident
did cause a bleed in my brainstem cavernoma.
Due
to the vulnerable cavernoma's location causing the
double vision I had (and possibly headaches) days
after the accident.
Now
it is more clear that the other symptoms were due
to the whiplash+ that was complicated by the re-bleed
and the domino effect that it caused with my health
due to all the symptoms together and old blood contamination.
However,
there is still a concern in that the cavernoma is
slowly growing bigger and that means that I may need
an operation one day if it keeps getting bigger. I
believe that there are non-surgical
ways to do that and I am looking into that: Integrative
Manual Therapies including CranioSacral Therapy, Lymph
Drainage Therapy & Brain Nuclei Techniques.
The
progress that has been made has much to do with me
stopping my life to heal -and that's - once I found
out that those with multiple in-head bleeds are often
put on bedrest! So I began living a modified version
of mostly staying at home and taking lots of baths
and naps and each day I do that - I feel stronger
- at some point I have a back slide day but over all
I am healing- slowly but surely.
Up until I was told about the need for brainstem surgery...
I was on a low ebb but still did my best to keep going
as best I could to help out with family errands and
caring for our son. Since I had stopped working to
heal... and even had to move away with all the offers
that came that I could not take... so I moved up to
Northern CA and tried with old friends to start a
Metaphysical bookstore where I could work with clients
in the back - as I felt I was up to it. (Or if I died
all my things would be for sale - and these friends
could sell it for my husband -to be less of a burden
on him.) But with with the news of a need for surgery
- a year last May - I let that go too so I could really
focus on all the healing time I now understood I needed.
I
am certain that without the car accident impact my
cavernoma would not have bled again. I know
this because I was focusing on a less stressful schedule
after I lost my smile and preparing to to have the
child we had put off till we were more settled. In
our new home we focused on doing all I could to have
optimal health just like we had done with our son-
before he came when I was in my best shape ever at
36.
And
the car accident stopped the baby plan in it's tracks
- for now and maybe forever - short of a miracle.
The accident caused so many other injuries in my back
and neck I could not support the weight and if I had
another bleed during labor that would be bad... plus
I am 47 now past 45.
Did you know you need
Doctor's permission to get pregnant after 45?
I was not sure if a Doctor would agree I could
carry - when I finally did heal from all the whiplash+
- so I have made my peace and still pray for a miracle...
but short of that. Our son will be an only child...
he used to ask about it all the time. He doesn't anymore
- I live to make up what this accident did to him.
Yet he will understand when new breakthroughs are
found that it had to happen this way.
It
was hard to know what symptoms were symptoms from
the car accident impact and which were the whiplash+
and then the secondary injuries from what was not
understood and on top of all that I was not able to
do my yoga practice everyday - I am not able to do
my set of Yogdadance Flow or Astanga - due to my tailbone
pain and the stamina of the whole set is too much
for me now - so I developed a form of healing I call
bathyoga.
There
were times I felt like I was dying and I don't think
I would have made it if I had not been doing all the
treatments and supplements I have been doings - ongoing
- and the love of my husband and son at my side through
it all. They have helped to inspire me to keep doing
my best to heal from all this.
As far as HYDERGINE,
there was a month when I could not get it and all
my symptoms got worse. This was enough of a reason
for me to make sure I always have some when I need
it. It helps headaches immediately and other pains
too - overall aches and stuff. I just feel better
when I take it - it has many other positive side affects..
I feel like I am growing more intelligent and that
is cool when you are dealing with TBI
- who know's it just might heal it?
When
the accident first happened - the first thing I did
was study Hypnotherapy. I just knew that the Hypnotherapy
would help me to communicate with my subconscious
mind that controls my automatic nervous system. Somehow
it was on overload and continues from the stress that
continues to happen around the accident.. it has been
nothing but stress.
Like
the kind of stress that comes from the fact that all
the Neurosurgeons so far have completely different
opinions of what to do and what happened at the accident
to the cavernoma:
Neurosurgeon #1 - 2 years into the process
- he says surgery is needed A.S.A.P. due to multiple
bleeds that were found - prevention from it bleeding
again. It was only a few months after the vulnerable
small tear in the cavernoma had bled and healed -
yet the Anginoma Alliance says that for 2 years after
a first bleed a cavernoma is still vulnerable. Due
to t the impact of the car accident more cranial nerves
were injured - along with this whiplash+ that seems
to make me feel so weak I was dying at times ever
since the car accident happened and he could not say
what affect that the whiplash+ accident had had on
the cavernoma when it was obvious that it had made
my vulnerable condition worse and the whiplash + near
impossible to heal - somehow due to combination of
them both. He said it was possible but could not say
for sure - that trauma was not known to cause brainstem
cavernoma bleeds. They were very kind and seemed open
to what I was doing as Integrative healing methods.
Perhaps
they are meant to learn this exception to the rule
from my medical case? Perhaps due to where my cavernoma
is located and the prior mild stroke that made what
otherwise would not have bled - bleed with the whiplash
impact?
With
this possibility in mind I decided to heal more from
the accident first... so I could prepare for surgery
with better results because I would be in better overall
health in time with lots of rest.
Also, I knew that I needed to find out more about
this whiplash+ and my cavernoma's location and how
they were possibly connected and why...to find out
what helps it to heal.
However,
once the need for brainstem micro- neurosurgery was
known - my Doctors & practitioners at the time
resigned for sake of liability because I had chosen
not to do the operation that a Neurosurgeon told me
I needed to do.
I
understand why they did that and although it was hard
at the time... I needed to find those who were not
overwhelmed by my condition and were curious as to
what it would help it.
Neurosurgeon #2 - 3 years
into the process - we talk to a Doctor about my medical
case and he says that the location of cavernoma is
inoperable.
So doing the operation would have killed me
for sure in his mind. He suggested for brainstem cavernomas
- instead using the Gamma Knife that shoots radiation
at the bleed. Interestingly enough, the first Neurosurgeon
had said that they had stopped using the Gamma Knife
because it caused additional bleeds and did not have
good results overall for brainstem bleeds.
So they canceled out each other...
I
moved on and found new Doctors who not only agreed
with my Integrative approach - they thought is was
a really good idea to prepare for a super risky brainstem
operation with cleaning out the infection and inflammation
that was found by my Physical Therapist - that when
you understand the body - you see that this is how
it would have responded to the cavernoma rebleeding
leaving old blood contamination down in my tailbone
due to the 4th ventricle sending it down rather than
crossing the BBB up to my inner brain - a wise choice
for the body to make. This explains the urinary infection
happening 2 weeks after the car accident and the lingering
ache in my tailbone that is well seated there and
slowly healing with Raindrop Therapy Massage Sessions
using Young Living Theraputic Grade Essential Oils
up and down my spine - burning away the inflammation.
IT WENT DOWNLIKE THIS:
Once my Physical Therapist found infection and inflammation
at my tailbone and left temple as well as all kinds
of pain along my dura... she began to see that I had
been fighting for my life... from the bleed and the
repercussions of that bleed - with old blood contamination.
My
new PMD said to me, "You
had another bleed at the accident, another stroke."
She
went on to say in a letter:
"She has several MRI's that well document
this cavernous malformation and her history is totally
consistant with an initial bleed in Nov 2004and a
repeat bleed at the time of the MVA in April 2005."
My
Integrative Neurologist said:
"It appears that following the MVA 4/5/05 the
patient had significant symptoms including double-vision,
nausea,some mental confusion and difficulty with stress.
Given the anatomy of the cavernous malformation in
the posterior pons it appear likely that the whiplash
injury on 4/5/05 aggravated the cavernous malformation
and perhaps caused rebleeding. This would account
for nausea and probably the diplopia. A rebleed at
the time of the whiplash injury would also explain
Dr. Steinberg's observation that the mixed signal
of the lesion suggested both old and new hemorrhages."
Neurosurgeon
#3 - Now that I have devoted a year of my life
to just healing to prepare for the operation - 3+
years into the process since the accident. And he
says that it is operable but
not needed. That is until I have double vision again.
Which would mean it was the cavernoma symptom that
would tell me I needed the operation.
In
his report this skilled Neurosurgeon has been very
clear with this sentence.
"This woman has a cavernous malformation,
I am not certain what symptoms may have been caused
by this but the double vision that she had a few days
following her car accident (and perhaps headache)
then were cause
of a small hemorrhage from the lesion."
This is not a maybe... it is a 100% that my
case is an exception from what is known about cavernomas
not bleeding at a car accident - that may or may not
be true depending on the location of the cavernoma
and the particular injury. In my case, the fact that
only 4 months ealier there had been a small bleed
that healed made my re-bleed due to the impact of
my head hitting the headrest at just the right angle
and force to make a vulnerable situation re-bleed.
HE REPORTED THIS INDEPENDENT OF READING THE OTHER
DOCTOR REPORTS - HE IS THE MOST EXPERIENCED NEUROLOGIST
AT KAISER & WAS HEAD OF THE DEPARTMENT FOR MANY
YEARS.
There
are not many who have survived multiple in-head brainstem
bleeds... I took the hydergine for the first stroke
and had it in the house when the 2nd one happened
as soon as I came home from the accident.
Hydergine
is already being used for Strokes in
many European hospitals (also pre-surgery & First
Aid in the ER). My Doctor and I have come to understand
that if I had not taken Hydergine 1/2 hour after the
accident - it is likely that I may have died from
the impact that caused another stroke.
HERE
IS A STUDY ON
STROKES & HYDERGINE
A YEAR BEFORE THE ACCIDENT
at Magic 95 as a feature Recording Artist.
: 
After 3+ years of saving my life -
I am very grateful to be alive &
what I have been through
has made me a health activist!
It
has been the cleaning up of the blood that bled then
that has taken 3+ years. More so because in was an
in-head injury that was not obvious due to my high
energy former health I was in at the time of the accident.
It took time for my health to break down... my yoga
set would have cleared it out sooner - yet due to
the whiplash I could not do my yoga practice - only
bathyoga.
I had a nose bleed that night - still unsure what
that was- yet I had have red pimples around my mouth
and nose during my cleansing (2 3-Days fasts- 2 weeks
apart 4/08) - then a throat infection right after
the accident that I have been dealing with ever since.
(This is connected with the tonsil cyst that was found
in the 3rd year after the accident.)
On
4/8/05 I awoke with double vision that lasted a month
1/2. Also, I had a urinary infection in the second
week after the accident (this is connected to the
tail bone pain I am still dealing with.)
Evidence
Based Research - once these Doctors treated
me for what would have happened if there had been
another bleed at the accident (old blood contamination
causing infection and inflammation) and then I finally
began to show some progress.
EROGNOMIC
WELLNESS & INTEGRATIVE ENERGETIC MEDICINE:
NOOTROPICS - NUTRITION - NEW THOUGHT
Are you offering your gift? Do you have a vision for
your life.... do you share this vision with your partner?
Are
you helping to make the world a better place...
with all your intereactions?
We would love any insights that you have to offer...
please contact us.
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